Manna Manuka

Several times I have stalled a post because I still haven't told you about this:

Manna Manuka is out in the world! The labour was fast and wonderful. Ember (Pickle has decided I should use her real name too) was my birth partner for the first three hours, copying my 'funny movements' while I managed back-to-back contractions, fetching clean pants every time my waters broke (there was an ocean in there) and phoning Granny to let her know. Regardless of age, I couldn't have asked for a better person to be with me. She was calm but excited, did everything I asked and even made me laugh. With a big grinding crunch (yes, ouch), Manna spun round to the perfect position and the contractions got much faster, but also much easier for me. Gappy came to play with Ember and my excellent friend and neighbour Miriam came to take over as birth partner and get me to the hospital. Her husband drove us and we spent a looooong time in a traffic jam (tip: don't go into labour on a Saturday morning) while I tried not to groan too alarmingly, but we got there in time and Manna was born an hour later, weighing 8' 6". She was grey and floppy in a way which makes my heart tremble as I write. The midwife couldn't get her breathing, so the neonatal superheroes flooded in and after just a few puffs of the oxygen mask she was breathing fine. I lost a very messy amount of blood, which is why I can never have a homebirth - way too much cleaning to do afterwards, but I didn't need a tranfusion.

Once I had been stitched and had a cursory bath (why do my daughters feel the need to cover me in meconium at first sight?), I fed Manna her first bottle. I was sad I didn't have a breast to offer her, but the way she guzzled it down then looked so content afterwards reassured me this was good enough. And I knew I had milk from some wonderful women in the freezer at home. Ember wanted to be the first to know Manna's name, so I told her over the phone and she announced it to Gappy and my parents. This is the sisters' first meeting:

Ember has been such an amazing big sister. I didn't imagine she would be so unfailingly tender and understanding. I feel I am falling in love with Ember in a new way, as I fell in love with Thomas in a new way seeing him with Ember.

Manna herself is awesomely contented and smiley. She even sleeps! In the night! She had bad reflux and took a while to get her birthweight back and she struggles with colic still, but generallly she looks like this:

She is cute in both ways, always watching, learning; now grabbing whatever she can.

When she was three months I had my final surgery - ovaries and fallopian tubes out. It is a big relief to feel safer, although it has been tricky getting the HRT balanced, but I think I'm there now. I didn't have to stay in hospital overnight, so Gappy had a day with Manna. It was very painful to leave her for so long, but of course she was quite happy:

So now she is splendidly plump and already very keen to be up at the table with the big girls. She is so pleased with herself and merrily teeths on bell pepper or carrot, grinning all the while.

I am so happy with both my daughters. Of course it isn't always easy being a single mum with two children and there have been times of deep grief for the loss of Thomas too, but we feel like a complete and loving family, which is all I ever wanted. Our next adventure is to find a new home, but we'll stay in Chagford and maybe it will be a strengthening thing, in the end, to get some distance from the memories which overlay this house and garden for me. There are so many more memories to be made and I will do everything I can to make them very, very happy.

Against All Expectations

Against all expectations, life without breasts is almost indistinguishable from life with breasts. I'm sore and doing physio to regain mobility as my skin tightens around the scars. The drains were a pain and so disabling (although Pickle did appreciate me having tentacles like an Octonaut character) but they were out on Day 4. I'm still waiting for big emotions. Maybe they'll come. I know for some women it's months before they grieve their breasts. Of course I'm hoping I got sufficiently angry and sad and self-pitying and frightened when I first knew I would lose them, so that work is done. I've hoped that before and generally found I've just completed Stage One. Watch this space.

I've been to a couple of parties in a low-key way. At one, my first time with a group of my friends, I got hot in the sun and felt self-conscious taking my cardigan off to reveal a figure-hugging top underneath, swollen only by bruising and a little fluid under the skin. The moment turned out to not really be A Moment at all. I sat in the sun. I talked to my friends. I got tired and walked home, Pickle stoically carrying everything in her backpack. I made a simple tea and we went to bed. The next morning I was pleased to note that my yellow and purple stripy socks were perfectly matched to the colours on my chest. It's always good to accessorise.

Even the actual surgery was okay. I lay on the most wonderful mattress of heated gel (appparently it's really cold in theatre) and wished I could hang on to the sensation of being so warm and comfortable while the cold white anaesthetic burrowed into my arm. Bliss...

I was in a child space when I woke and spent a minute crying for my husband. A lovely nurse assured me we could phone him when I was back on the ward and I think welled up herself when I said (sobbed) that we couldn't because he died. Then that passed and I was more concerned with what the HELL was happening to my legs! In my drugged-up state it felt as though they were being alternately squeezed in inflating tubes. Turns out that was actually happpening (sometimes life is so weird) to prevent blood clots. Then I decided it felt quite nice and drifted off again.

I could have come home the same day but was still needing a steadying arm to get to the loo, so stayed in hospital reading and eating crisps. (Honestly, I'm not sure I warrant any sympathy at all.) I didn't need any painkillers for the first 24 hours because I still had anaesthetic in my system. I've been on regular paracetomol since but am wondering if I really need it. Might wait and see how it is with my dressing off. The hospital are too busy to take it off this week as planned, but my lovely nurse friend will do it with me. There's only so long it can be a good thing to wrap a wound in plastic in the summer.

So now I am pretty functional. I can't carry much or hoover or iron (I don't actually own an iron) and I can't open or close my windows. This morning I feared a stiff jar lid might get the better of me, but it gave up before I did. Pickle is wonderful. The day I came home she placed, with exquisite care, a row of kisses across my jumper. How could I not heal after that? Plus, I am surrounded by helpful friends and family (my sister stayed for a couple of days and even folded my pants!), the sun is shining and roses are blasting out of the green in my garden.

The most surprising thing for me is how instantly I felt normal in my new streamlined body. I had wondered beforehand how it would affect my dance to be a different shape. I imagined it would perhaps be awkward, that I would always feel a lack. I can't dance much yet, but it feels fine. This is just the shape of me and I like it. I like me.

Happy Birthday Pickle

Pickle is four! This year she definitely wanted a proper party, which she hasn't had before. I hired the local hall and she carefully made invitations.

When the big day came, we were both slightly overexcited. I sang happy birthday at the exact minute she became four and she was very proud. Then the present-opening began.

Having failed to make a tape dispenser whistle,

Pickle had more success with her new 'binocliers'.

And then the party. In a frenzy of performance anxiety, I'd planned lots of games, but actually the children spent more time playing with balloons than anything else.

 

We played musical chairs (with joint winners who squeezed into the final chair together) and pass-the-parcel and then feasted. All food groups were represented: sugar, salt, jelly and fairy bread.

When they were quite stuffed, I brought out the cake. I can take no credit for this fantastic creation - it is the work of our good friend Davepops and his gang of helpers. If you're planning to be an astronaut, this is the kind of cake you want:

We sang and blew out the candles

...and then it was back to the balloons. There was a great turnout of dads, some of whom wisely lurked close to the food, some discussed dogma and humility in the context of science and religion (or something like that)...

while others took a serious beating.

Eventually we got everything cleared up, party bags distributed and friends sent smiling home. We locked the big old door with the very impressive key

and went home for more presents and a cup of tea.

I am so glad Pickle had a great birthday. Of course that's what she deserves - what all children deserve - but also I have today decided to have reconstructive surgery after my double mastectomy and that will entail some serious recovery time during which I won't be able to be with her like I normally am. A few days in hospital (still trying to cope with that idea); a couple of weeks of lifting nothing heavier than a kettle and mostly needing to rest; then many more weeks, until three months in, before I can start to live my normal life and lift my plumptious wondergirl into my arms again. Basically, a lot of sacrifice for Pickle and a lot of help needed from my family and community who I have already leaned heavily on over the last couple of years. But then hopefully I will have a body I'm happy with and can focus on creating Pickle and I a joyful future.

Success and Failure

Our Winter Fayre was a success. We all shuffled in early to unfurl curtains and blankets across Formica tables, tak ivy to the magnolia walls and display our wares. These photos do none of us justice, but were the best I could manage between customers, on a camera which needed me to rub its batteries on my thighs between shots - real girl power :o).

I was ensconced in the corner with my neighbour who makes strikingly patterned pottery. We normally snatch at conversation as we scuttle past one another, so it was lovely to have a whole day together and we spent a lot of it laughing.

Another neighbour, Damien Hackney of Oakleaf Jewellery, was there too (we are a crafty street).

Nomi sold her amazing artwork and jewellery and the music of Telling the Bees which cheered us all more than the usual Christmas jingles.

Danielle Barlow, who organised the fayre, sold her ever-popular cards, prints and original work.

Rima was there with her traveling Hermitage, selling wonders as ever, with the new and powerful lure (I succumbed) of a Rima Staines calendar.

And there were more, who escaped my dodgy photography when even the power of a maiden's thighs was not enough to recharge the batteries. Iah of Ecofreq sold tempting fabric cuffs and adornments; Sara sold handmade funky bags and books; Sonny of The Healing Hedgerow sold potions and lotions to cure and soothe (and washable sanitary towels which one lady mistook for spectacle cases) and Danielle's entire family plied us all with drinks and stollen. We all agreed we'd do it again next year :o).

Meanwhile, back at the ranch, Pickle and I have been struggling. I had thought (in a fit of self-ignorance) that waiting for my surgery would teach me patience. Nope. Instead, I am learning how astonishingly deep my impatience goes. I have a consultation with a surgeon in January, but then it could be months before I get a surgery date. Also, a referral for an MRI but no word of that yet.

So, I am stressed and needing a bit of space to collect myself. Pickle, feeling me retreat slightly, clings on tight. Which leaves me feeling I have less space than before. She wants to reduce her nursery afternoons from 3 to 1 (I've booked 2 in case she changes her mind) and move her bed into my room. I've resolved to spend as long as it takes to sing her to sleep and just go to bed earlier and earlier if she spends all night in with me, scrabbling about and asking if it's morning yet. But the beds stay where they are. (For now.) I'm finding ways to be close with Pickle, to play uninterrupted by such inconsequential irritants as laundry and cooking. It's hard - often I'd rather read the paper or have a nap, or just wash up with enough quiet to think. Failing my girl is the thing which will tip me over the edge faster than anything else. I realised I was halfway down the cliff and called for help. She got ill. A very long night of vomiting (in my bed EVERY time!) for her and laundry for me. By the morning we were both ragged. The washing machine, laundry basket and bath were all full. Everything was cancelled. We were in quarantine and could do nothing but be together. It helped and she healed from her first advent chocolate breakfast. I am back at the top again, leaning dangerously, but still grasping tufts of seagrass with my toes. I don't know which way I'll tip, but I'll keep doing what I can to find safe ground for us both in the storms ahead. Last Christmas was tough. I'm hoping this one will be easier, but this second year hasn't been easier in general. January waits to pounce with the anniversary of Thomas dying and February with Valentine's Day and Pickle's birthday, which is a joy and a wounding because he should be there, at least on her special day. And then March and the rebalancing of the light and, I pray, my mind. Let's hope we're all still standing on the other side.